Thank you to the wonderful team at Quakers Hill Veterinary Hospital. This is the third year they have held this great fundraiser for MND NSW. The day included a barbecue, raffle and the sale of MND NSW merchandise, raising $4,000. Looks like a fun day with lots of yummy food.
ALSUntangled reviews alternative and off-label treatments for people with ALS (PALS). Recently, ALS Untangled have reviewed the use of a
class of medications called antiretrovirals (ARVs) for treating ALS/MND (in response to 1400 requests). Retroviruses are a family of RNA viruses defined by their ability to integrate themselves into the host cell DNA. The review found that based on the lack of evidence for use of ARVs in PALS who test negative for human immunodeficiency virus (HIV) and human t-cell leukemia virus (HTLV) they cannot recommend ARVs as a treatment for ALS. They do note that there are two ongoing trials of ARVs in PALS and they look forward to the results. You can read the full paper here https://www.tandfonline.com/doi/pdf/10.1080/21678421.2018.1465248?needAccess=true and find our more about ALSuntagled here http://www.alsuntangled.com/.
Thank you to Alexandra Vainauskas who generously hosted a Benefit Day for MND NSW in her home. It was a fun day of food and friends, with 25 people attending. A total of $849 was raised from donations and the sale of MND NSW merchandise.
We recently received a lovely message from one of our members who attended the Walk to d'Feet in Canberra last year. "I was so inspired by the love and support friends and family gave me at the walk for MND last year. It was a very emotional day looking around at the many supporters all dressed in blue and MND NSW staff who give their undivided time to help raise awareness for this beastly disease. Cheers Margie" If you haven't yet experienced a Walk to d'Feet MND why not join us in Canberra on Sunday 24 June. Register here.
Thank you and a huge congratulations to Annemarie Young and her wonderful team of supporters in Tumut. To date they have raised over $23,500 for MND Week, through street stalls, raffles, lots of local events and the Ice Bucket Challenge. What a fantastic result. Looks like they had a lot of fun.
