A big thank you to Steven Plunkett and his daughter Rebecca who organised 'Plunkys Ride for MND', a fun cruise by bike and car to help create awareness and support for MND NSW. Steven's love of motor bikes inspired the event. The ride started at Ourimbah rest stop then continued around Lake Macquarie and finished at Caves Beach. Despite the rain the day received great support and raised $3,180. Thank you Steven and Rebecca.

 

Thank you to a special young lady, Shailee Sullivan, who gave her time before school each morning during the last week of June with a fundraising and merchandise stall for MND NSW. Shailee's fundraiser was a great success and she raised a fantastic $1,000. Thank you also to the Umina Beach Public School community who gave their support. Congratulations Shailee!

A big thank you to the teachers and pupils of Holy Spirit School in Lavington who recently raised over $2,000 for MND NSW with an ice bucket challenge. A special mention to Jordan Delaney who individually raised $700 towards this total, pictured left completing the ice bucket challenge. Thanks Jordan, love your MND NSW T-shirt.

The New South Wales state parliament is currently holding an inquiry into the NDIS and disability in NSW. They want to hear about peoples experience with the NDIS and we encourage people with MND to share their experiences. Whether you are having a good experience or a bad one, we all need to make sure our voices and stories are heard. The closing date for submissions is Thursday 9 August 2018. The inquiry

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